Today was a hard day

Today was a hard day. Days similar to today have tried to break me and sometimes I think where I find my strength is keeping it all deep inside of me wrapped up tightly with all the other things I bury for the sake of others.

I often write about how being bipolar feels to me. How depression binds me. I tend to shy away from sharing the part of what it is I actually go through to heal, to survive. The experiences themselves I hide only showing the pretty words strung together in a useable quote. To protect myself, to protect other’s maybe. Not today. Today I had to start over with a re-assesment of my mental health and well-being. I have come quite far from when I started my self-care just over five years ago. Yet, I cannot seem to do more than survive. 

I walked into the office feeling the same I do most days though it’s hard to describe. I mostly go through the motions of what needs to be done to get to the next day only to repeat the cycle. Lying to my brain that tomorrow, we can breathe, we can relax, we can have a good day and maybe we can do something we want to do without criticism, without guilt, without a time limit as my time has not been my own for such a long time now. So, I walk in and sit down and BamBam the therapy dog climbs up his giant stairs onto my psychiatrist’s desk and sits right in front of my face waiting for his pets.

Isn’t he adorable? So sweet and seemingly concerned of my well being. Throughout the session I would watch this look overtake my doctor filled with sadness, concern and so much empathy for what it is I endure. I was uncomfortable, I didn’t understand why? It seems that look is gone from so many familiar faces it was unrecognizable. Conditioned that what I endure is not as bad as it feels or not as severe because I am strong, because I survive, because I am a talented actress and the best performance of my life, is my life and because I am shown that I am selfish making such an experience feel unworthy. I fought tears during the 90 minute season as if crying was painful, or not allowed but really when I start I often cannot stop. Sure sometimes I want to be held, in silence but mostly I prefer these moments are when I am alone. I feel myself betraying myself by doing such a thing in front of another human being. Every part of my being screams to stop, Stop, STOP! I do temporarily, at least until she pokes another trigger.

I have control issues. Anytime I have “let go,” the consequences have been astronomical and I carry them always. They are as much a part of me as my bones, skin and blood is. The things that break me in session, are the same things that have been slowly killing me, making me sicker physically and mentally. It is part of who I am, to feel everything so intensely or feel nothing at all. I’m not really sure if that is part of my personality at this point or just a combination of Bipolar Disorder and all the other labels slapped on my chart. The main triggers, are naturally things I am not in control of. I drift while she types, watching BamBam now in his tiny dog bed, belly up and snoring louder than something so small should be able to. The third time she mentions how difficult my situation must be due to my son’s autism, I correct her firmly. “He is not a trigger.” My love for him and his for me is unconditional. WE accept each other exactly as we are. No one else does that. Maybe that is why the bond between mother and son or father and daughter seem to be so strong. I explained and she accepted.

After adding another diagnostic issue to my chart she asks cautiously if I would be wiling to see a trauma therapist. (Meanwhile I can still see my regular therapist.) Now of course how far I’ve come seems minuscule at this point. She says something along the lines of, “I know to you, you may not think what you have experienced is trauma but it doesn’t have to be physical to be considered trauma. You show classic sign of PTSD from the trauma you have experienced (specifically these 2 instances, including the sudden seemingly random onset of your disorder almost 18-19 years ago) and you have been in survival mode ever since.” My eyes filled quickly and suddenly. So much truth is, hard. I answer her questions, telling her things I would never tell another soul (but I want to feel better, so I do.) Telling her things I have told other’s but had received no reprieve or true help besides empty words, disinterest, judgment, etc. Blah, blah, blah.

We make a plan of action, the best we can with the hand we are dealt. BamBam wakes and comes over to me to say his goodbyes. I leave physically exhausted, mentally drained. Today was a hard day.

I left to pick my son up from school and we went home. Continued with all the things I am supposed to do, have to do to survive. Did all the things I can muster the strength to do with a smile; so my son is happy, healthy and feels loved for being exactly who he is, every single part of him that makes him who he is and allowing him to exist the way he needs ands wants to. My turn isn’t a real thing. It’s a wish list my doctor has on my chart and on this list there are other things she wants for me that I won’t allow myself to dwell on, to want (when I can help it), knowing there is always a barter to be made for a fraction of what I may want and sometimes a punishment of sorts for thinking about myself. Fighting for things I should have a right to, well I do not have the energy, will power or time for such silly things.

Tomorrow I will feel a little better, until I don’t again. Back and forth. My mental illness is a neurological (and genetic) condition I did nothing to aquire and no longer can tell if I deserve. But don’t worry, in a few days I’ll gather myself and be back to the approved version I have been shown, I am allowed to be.

Today was a hard day.

_____________________________________________________________________

 

“I think the saddest people always try their hardest to make people happy because they know what it’s like to feel absolutely worthless and they don’t want anyone else to feel like that.”

― Robin Williams

This is what depression looks like

This is what depression looks like:

© Andrea DiGiglio
© Drea DiGiglio
This is what depression feels like (to me anyway.)
It’s more than the really bad days of not being able to get out of bed. The idea of getting out of bed is exhausting. Not showering for days on end and not giving a rat’s ass about it. Not eating for days or perhaps the opposite and shoveling food mindlessly and probably guilt tripping yourself for it every step of the way. Its not just the days where you cannot muster the strength to get out of bed. It’s the days where you feel like that but you do get out of bed, too.
If you have kids, you still have to get them ready for school and take them to their appointments. Sure, maybe your in sweats instead of actual clothes but who cares. You clearly don’t. If you work, you work. You don’t socialize, you don’t count the minutes. You just work and you’re not entirely sure if you’re grateful it’s over because you hate working but now what the fuck are you going do with your time? Every activity takes effort. Every activity. The world looks as if it is tinted in a lower temperature color. Food doesn’t taste as good. You drink, whether it’s to be numb or shut the noise in your head up or just to feel, settled. Or perhaps some other alternative to cope.
Your body and you argue. You’re sore for no reason or just tired all of the time. Or both.
At first you say how you feel. Then you feel like a burden. Maybe you are. Maybe you aren’t. You take care of everyone except yourself because all you are trying to do at this point is survive. This is usually the point when people bring up the things you do (or don’t do) because you’re depressed, because you seem to always be depressed and yes you’re already aware of them. When people bring them up a feeling erupts, a cross between; feeling guilty and angry. Guilty for your behavior or lack there of and that they noticed and want you to know they noticed. Anger because you now feel as if your feelings are no longer valid and only their feelings are and why not just do it instead of making me feel bad about it because obviously on this day I am struggling?
People who love you try to understand and maybe they really do. But let’s be honest it’s annoying when a family member isn’t contributing or is grumpy, sad or angry all of the time.
So you stop saying how you feel. It’s too hard to continuously repeat yourself and it’s not going away, it just keeps coming back. So you smile. You laugh. You try to, fake it till you make it.
Then people like us see these smiling photos stream across social media. Smiling, happy. All the while suffering. Enduring. Fighting. They don’t know they aren’t alone.

So, apparently. This is what depression looks like. We put makeup on so we can feel normal, look normal and maybe to fake it. Maybe it’s so the people in our lives will stop asking if we are okay because no, we are not okay. Maybe we don’t wan’t the shame and guilt of feeling how we feel. Maybe we are just too damn depressed to have another conversation about it. Today I am not okay and that is okay. Just maybe, tomorrow I will be and that smile might be real. If it’s not? I suppose you might not really be able to tell because we live in a world where those who carry the burden of a mental illness feel like a burden. It’s not just the words people say it’s their actions time and time again. Actions which do not say, “I understand you are suffering.” Rather say, “When will this end this time so the ‘real you’ will be back” (For them.) The longer someones struggle is with their disorder, the longer they suffer. The less patient I find people to be. It’s a sad world I find us to be in. Where those who always have the kindest of hearts are often the most broken.

Much love to you all, be kind to one another. Keep fighting through the darkness and know you are worth fighting for, your life is worth fighting for. The good days are worth it. Don’t give up.

XO
-Andrea

From my personal journal during a bipolar episode

I’m sharing this again because for me, it’s important to share my struggles. In hopes that other’s will see there is still reason for hope. I still have bad days. Hard days. Now, my good days are filled with so much love and joy and kindness, it truly makes these bad days easier to survive. I’m still that girl and I always will be. That’s the nature of my disorder, but I am so much more than that and now I can see that.

Here is an entry from my private journal. Honestly it’s on the lighter side, not sure what that says about my inner struggles.

October 2013:

I feel as if I’m floating through a sea of shadows. My mind is as tired as my body. I try to find the lighter side of things but the irritation of doing so is nauseating. I dream sometimes of a little house with an ocean view on a private beach where my mind can finally relax and I can enjoy my time here in this world. I dream of a body I feel comfortable in with no self loathing. Sadly, all of these things aren’t real and they leave me longing until I break down from the loss of something I never even had. As I cycle through waves of yet another bipolar episode I reach acceptance if only for a short period of time. Acceptance for who I am, baggage and all. For who I’m not and never will be. Allowing myself to dream even if it will never come to pass. I float between angry, depressed and a calmness I refer as the calm before the next storm. I wonder if I have the right to want more for myself. I try to be thankful for those moments of eerie calmness and quiet contemplation. It’s always so difficult to do so as I know if I wait a few hours, a day, days even I’ll be back to singing the blues and crying myself to sleep. My wonderland is a wasteland for broken souls. Once again the calmness before the storm settles on my skin like an itch I just can’t scratch. I will always continue to fight this nearing episode with what little strength I have. The air is crisp and inviting me to soak up the sun. As if the darkness wasn’t calling out to me. It’s moments like this I crave to be alone, yet a piece of me reaches out to those I love for comfort, for acceptance. The things I love to do hold less meaning in times like this. A hollowness erupts inside of me, taunting my rage and sadness. There’s no real rhyme or reason to feel this way. I know my life is far from horrible. Like a warm blanket the darkness comforts me as it usually does, inviting me to let go and cry about everything and nothing at all. The sad truth for me is, this battle is everlasting. Light may win today but as a new day dawns the fight starts over. I sit in shambles of a former version of myself. Oddly with hope that it will all be over soon and I will yet again bask in the light and enjoy a fragment of this life. How have I become such a jaded and cynical creature? I sigh deeply and prepare for another drop into sadness and utter grief. As if each time a piece of me dies I must mourn the loss. With shock plastered across me I can admit I am far better now with these modern poisons than many moons ago when I laid adrift in my depressing solitude. I accept this fate as much as I fight it. Always hiding this enormous side of myself from everyone. Knowing they couldn’t take it, knowing I couldn’t take that look upon their face or their response as heartfelt as they meant it to be. It feels as if I am living two lives all of the time. Except once in a while, like a full moon, where both sides of me collide and the true version of what I’ve become comes into full view. I don’t always hate her, the girl looking back at me. Though her voice is like poison in my mind. I would never wish this inner struggle on a single soul, it is far to cruel. Yet the calmness washes over me carrying a wicked grin. Even it sees what comes next. It feels pleasure with a nearing episode and yet it feels sorry for me too. I stare into the dark night’s sky wishing this episode would pass me by for once. So hopeful in my suffering. Now that is blind faith. Ridiculous as any other. I am but a shadow dancing through my life. And to be whole is but a dream.

Andrea
XO

Personal journal entry

Here is an entry from my private journal. Honestly it’s on the lighter side, not sure what that says about my inner struggles.

October 2013:

I feel as if I’m floating through a sea of shadows. My mind is as tired as my body. I try to find the lighter side of things but the irritation of doing so is nauseating. I dream sometimes of a little house with an ocean view on a private beach where my mind can finally relax and I can enjoy my time here in this world. I dream of a body I feel comfortable in with no self loathing. Sadly, all of these things aren’t real and they leave me longing until I break down from the loss of something I never even had. As I cycle through waves of yet another bipolar episode I reach acceptance if only for a short period of time. Acceptance for who I am, baggage and all. For who I’m not and never will be. Allowing myself to dream even if it will never come to pass. I float between angry, depressed and a calmness I refer as the calm before the next storm. I wonder if I have the right to want more for myself. I try to be thankful for those moments of eerie calmness and quiet contemplation. It’s always so difficult to do so as I know if I wait a few hours, a day, days even I’ll be back to singing the blues and crying myself to sleep. My wonderland is a wasteland for broken souls. Once again the calmness before the storm settles on my skin like an itch I just can’t scratch. I will always continue to fight this nearing episode with what little strength I have. The air is crisp and inviting me to soak up the sun. As if the darkness wasn’t calling out to me. It’s moments like this I crave to be alone, yet a piece of me reaches out to those I love for comfort, for acceptance. The things I love to do hold less meaning in times like this. A hollowness erupts inside of me, taunting my rage and sadness. There’s no real rhyme or reason to feel this way. I know my life is far from horrible. Like a warm blanket the darkness comforts me as it usually does, inviting me to let go and cry about everything and nothing at all. The sad truth for me is, this battle is everlasting. Light may win today but as a new day dawns the fight starts over. I sit in shambles of a former version of myself. Oddly with hope that it will all be over soon and I will yet again bask in the light and enjoy a fragment of this life. How have I become such a jaded and cynical creature? I sigh deeply and prepare for another drop into sadness and utter grief. As if each time a piece of me dies I must mourn the loss. With shock plastered across me I can admit I am far better now with these modern poisons than many moons ago when I laid adrift in my depressing solitude. I accept this fate as much as I fight it. Always hiding this enormous side of myself from everyone. Knowing they couldn’t take it, knowing I couldn’t take that look upon their face or their response as heartfelt as they meant it to be. It feels as if I am living two lives all of the time. Except once in a while, like a full moon, where both sides of me collide and the true version of what I’ve become comes into full view. I don’t always hate her, the girl looking back at me. Though her voice is like poison in my mind. I would never wish this inner struggle on a single soul, it is far to cruel. Yet the calmness washes over me carrying a wicked grin. Even it sees what comes next. It feels pleasure with a nearing episode and yet it feels sorry for me too. I stare into the dark night’s sky wishing this episode would pass me by for once. So hopeful in my suffering. Now that is blind faith. Ridiculous as any other. I am but a shadow dancing through my life. And to be whole is but a dream.

Andrea
XO